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Amelia and Makenzie's juvenile Batten disease (CLN3) story.
ForeBatten Foundation
21 ต.ค. 2021
การดู 92,705 ครั้ง
Rare Sisters: Beyond Batten Disease
รวมเพลงชิวๆริมทะเล ฟังต่อเนื่อง [รวมเพลงฟังต่อเนื่อง G : Music Playlist]
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Utah girl who lost her battle with Batten Disease is the subject of a new film
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'Quite literally their only hope': Parents fight to cure sisters diagnosed with rare, fatal disorder
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The boy who always feels hungry | Rare Disease Day
Mila's Story