Patient Story: Bonnie & John speak at 2024 PFG Meeting in Seattle

Patient Story: Bonnie & John speak at 2024 PFG Meeting in Seattle

Unpacking the Pathology Report with Aishwary Ravindan, MD

Unpacking the Pathology Report with Aishwary Ravindan, MD

Movement & ECD: How Physical Activity Builds Resilience with Hanna Hunter, MD

Movement & ECD: How Physical Activity Builds Resilience with Hanna Hunter, MD

Questions & Answers: Insights from ECD Medical Experts

Questions & Answers: Insights from ECD Medical Experts

Why Research Matters with Gaurav Goyal, MD

Why Research Matters with Gaurav Goyal, MD

How Far We Have Come: An Evolving Research Landscape with Juvianee Estrada Veras, MD

How Far We Have Come: An Evolving Research Landscape with Juvianee Estrada Veras, MD

Understanding Integrative Medicine in Cancer Care with Blake Langley, ND, LAc

Understanding Integrative Medicine in Cancer Care with Blake Langley, ND, LAc

Tackling Pain and Fatigue in Erdheim-Chester Disease with Kevin O'Brien, RN, MS-CRNP

Tackling Pain and Fatigue in Erdheim-Chester Disease with Kevin O'Brien, RN, MS-CRNP

How ECD Impacts the Body's Organs with Eli Diamond, MD and Francesco Pegararo, MD

How ECD Impacts the Body's Organs with Eli Diamond, MD and Francesco Pegararo, MD

Treatment Spotlight: CAR-T and Transplant Therapy with Jacob Appelbaum, MD, PhD

Treatment Spotlight: CAR-T and Transplant Therapy with Jacob Appelbaum, MD, PhD

Treating Erdheim-Chester Disease with Dr. Ronald S. Go, MD.

Treating Erdheim-Chester Disease with Dr. Ronald S. Go, MD.

Overview of ECD Basic Biology with Ken McClain, MD, PhD

Overview of ECD Basic Biology with Ken McClain, MD, PhD

Disease, Anxiety, & Depression: Coping Strategies for Caregivers of Adults - Part 1

Disease, Anxiety, & Depression: Coping Strategies for Caregivers of Adults - Part 1

UNDERSTANDING MONOCYTE-RELATED DISORDERS INCLUDING EPIGENETICS AND GENOMICS

UNDERSTANDING MONOCYTE-RELATED DISORDERS INCLUDING EPIGENETICS AND GENOMICS

Abnormalities of Pituitary Imaging and Associated Endocrine Disorders in Erdheim-Chester Disease

Abnormalities of Pituitary Imaging and Associated Endocrine Disorders in Erdheim-Chester Disease

LONGITUDINAL ASSESSMENT OF CARDIAC INVOLVEMENT IN ECD USING CARDIAC MAGNETIC RESONANCE IMAGING

LONGITUDINAL ASSESSMENT OF CARDIAC INVOLVEMENT IN ECD USING CARDIAC MAGNETIC RESONANCE IMAGING

Early Changes in intermediate monocyte distribution correlate with relapse free survival...

Early Changes in intermediate monocyte distribution correlate with relapse free survival...

Geographic Clustering of Erdheim Chester Disease in Italy and France

Geographic Clustering of Erdheim Chester Disease in Italy and France

Medical Symposium: Welcome and Meeting overview

Medical Symposium: Welcome and Meeting overview

A Pilot Study of Patient Reported Outcome Measures among Individuals with Histiocytic Neoplasm

A Pilot Study of Patient Reported Outcome Measures among Individuals with Histiocytic Neoplasm

Medical Symposium 2023: History OF ECDGA & Focus on the Future

Medical Symposium 2023: History OF ECDGA & Focus on the Future

Radiology Workshop

Radiology Workshop

Pathology Mimics Workshop

Pathology Mimics Workshop

Neoplasms harboring class 3 MAP2K1 mutations including treatment with the ERK inhibitor ulixertinib

Neoplasms harboring class 3 MAP2K1 mutations including treatment with the ERK inhibitor ulixertinib

EFFICACY OF MEK INHIBITORS OF ERDHEIM CHESTER DISEASE

EFFICACY OF MEK INHIBITORS OF ERDHEIM CHESTER DISEASE

RAF-independent MEK mutations drive histiocytic neoplasms in vivo and are sensitive to single agent

RAF-independent MEK mutations drive histiocytic neoplasms in vivo and are sensitive to single agent

Multi National Series of 26 Patients

Multi National Series of 26 Patients

Cluster Analysis Unveils the Clinical Spectrum of Erdheim Chester Disease

Cluster Analysis Unveils the Clinical Spectrum of Erdheim Chester Disease

ECD Global Alliance Mission Forward

ECD Global Alliance Mission Forward

Meet the Experts

Meet the Experts