Abe's Story

Abe's Story

New York Islanders Interview Steve McCurdy Feb-1-2020

New York Islanders Interview Steve McCurdy Feb-1-2020

New York Islanders Puck Drop Feb-1-2020

New York Islanders Puck Drop Feb-1-2020

Barth Syndrome Spotlight Feb-1-2020

Barth Syndrome Spotlight Feb-1-2020

2019 1 12 Barth Syndrome Foundation 39 PSA

2019 1 12 Barth Syndrome Foundation 39 PSA

Externally Led Patient Focused Drug Development Meeting Overview

Externally Led Patient Focused Drug Development Meeting Overview

W. Todd Cade, PT, PhD, Professor, Washington University, St. Louis, Missouri

W. Todd Cade, PT, PhD, Professor, Washington University, St. Louis, Missouri

Clinical Trials Overview: Phrases and Phases of a Clinical Trials

Clinical Trials Overview: Phrases and Phases of a Clinical Trials

Today Show Recording

Today Show Recording

Development of Barth Syndrome Questionnaire for Research

Development of Barth Syndrome Questionnaire for Research

Introduction and Discussion of a new clinical therapeutic trial in Barth Syndrome

Introduction and Discussion of a new clinical therapeutic trial in Barth Syndrome

2016 10 25 Barth Syndrome Foundation 35 PSA

2016 10 25 Barth Syndrome Foundation 35 PSA

How do women adapt to being a Barth Syndrome carrier (Family Sessions)

How do women adapt to being a Barth Syndrome carrier (Family Sessions)

Tips and strategies for talking to your children about genetics (Family Sessions)

Tips and strategies for talking to your children about genetics (Family Sessions)

Barth Syndrome: In simple terms

Barth Syndrome: In simple terms

New Frontier (Family Sessions)

New Frontier (Family Sessions)

Potential Therapies for Barth Syndrome: Brittany DeCroes Hornby, PT, DPT, PCS

Potential Therapies for Barth Syndrome: Brittany DeCroes Hornby, PT, DPT, PCS

Potential Therapies for Barth Syndrome: Michael T. Chin, MD, PhD, FACC, FAHA

Potential Therapies for Barth Syndrome: Michael T. Chin, MD, PhD, FACC, FAHA

2016 Poster Presentations: Markus Keller

2016 Poster Presentations: Markus Keller

Advanced Therapies for Heart failure in Barth Syndrome cardiomyopathy (Family Sessions)

Advanced Therapies for Heart failure in Barth Syndrome cardiomyopathy (Family Sessions)

Florez Telles Family

Florez Telles Family

Vitamin and mineral supplemementation in Barth Syndrome (Family Sessions)

Vitamin and mineral supplemementation in Barth Syndrome (Family Sessions)

Evaluation of Cardiac Function in the Current Era

Evaluation of Cardiac Function in the Current Era

Mitochondria and Barth Syndrome (Family Sessions)

Mitochondria and Barth Syndrome (Family Sessions)

Cynthia James

Cynthia James

2016 Barth Syndrome Perspectives

2016 Barth Syndrome Perspectives

2016 Conference Perspectives: Carolyn Taylor

2016 Conference Perspectives: Carolyn Taylor

Rewards of Risk Taking (Family Sessions)

Rewards of Risk Taking (Family Sessions)

DNA to TAZ Variants (Family Sessions)

DNA to TAZ Variants (Family Sessions)

Medications Used To Treat Heart Failure (Family Sessions)

Medications Used To Treat Heart Failure (Family Sessions)